‘Having a disabled child is challenging

I was surprisingly calm when they told me my nine day old son was likely to be severely disabled. Sat in a sterile room with the doctors who had quickly assessed the clear and significant brain damage on his MRI scan – I only thought about the huge amount of love my husband and I and our two other boys had for our new baby.  With a shock of dark hair and dark eyes he was a beautiful boy and had shown in his first few days what a fighter he would be.

It felt like we could conquer anything with the love and happiness in our family. Just ten days before, I had been casually heading towards my due date after a third, relatively uneventful, pregnancy. Then one evening, without warning my waters broke…

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